Patients

Private Facebook Groups

• Ovarian Cancer Support Group: A large women’s only support group run by ovarian cancer patients for: ovarian cancer patients & survivors and female caregivers & supporters
• Sharsheret Embrace Community: Specifically for women living with metastatic breast or ovarian cancer. 
• Sisterhood of Ovarian Cancer Survivors: Women only. A group for Ovarian, Primary Peritoneal and Fallopian Tube Thrivers and Survivors as well as women who are relatives, friends and those who are professionals working with Ovarian Cancer Survivors.

Online Forums

• Inspire Ovarian Cancer Community: Engage with an active community discussing treatments, side effects, and coping strategies.
• SHARE Cancer Support: Join specialized online support groups led by trained facilitators, tailored specifically for women with ovarian cancer.

General Cancer Support Communities

• Teal Hearts Network: Peer-to-peer support group managed by the National Ovarian Cancer Coalition, offering a safe, moderated space for survivors.
• NOCC CancerConnect Community: A safe space for everyone touched by ovarian cancer. 
• Reddit r/ovariancancer: Discussions on treatments and mutual support.
• Twitter: Follow hashtags like #ovariancancer and #ovariancancerawareness to connect with a broader community and receive information.

Community Events

Patients in the Pacific Northwest are not alone in their fight against ovarian cancer. The Rivkin Center hosts three key events to bring together patients, survivors, and supporters. 

1. SummeRun 5K every July is a community-wide event open to everyone, offering an opportunity to honor loved ones and raise vital funds for ovarian cancer research.
2. Teal Town Hall is a more intimate gathering specifically for ovarian cancer patients, survivors, and thrivers, providing a supportive space to share experiences and resources. 
3. Science for Dinner is an exclusive event for those who have generously donated more than $5,000 towards critical research, offering an in-depth look at the latest advancements and the impact of their contributions.

Latest News

Stay informed about the latest advancements in ovarian cancer research and our efforts to raise transformational funding by signing up for our newsletter and following us on Facebook and Instagram. 

Tips for Ensuring Reliable Information in Online Groups

Connecting with others who share similar experiences can be invaluable. However, before you explore online communities, it's crucial to ensure that the information shared is reliable.

Reputation: Look for groups affiliated with reputable organizations, like the National Ovarian Cancer Coalition (NOCC) or Ovarian Cancer Research Alliance (OCRA).

• Moderation by Healthcare Professionals: Check if the group is moderated by professionals. Groups like CancerCare's ovarian cancer support group are led by oncology social workers offering expert guidance.
• Be Cautious of Overly Positive Claims: Be wary of miracle cures.
• Look for Cited Sources: Reliable groups cite peer-reviewed studies or medical guidelines.
• Understand the Motivations Behind Shared Information: Be cautious of users promoting products or services.
• Cross-Reference Information: Verify details through reputable medical websites.
• Value Personal Experiences but Consult Your Healthcare Team: Always consult your healthcare team for individual medical advice.
• Use Groups for Emotional Support: Focus on emotional support, not medical decision-making.
• Report Inaccurate Information: Report harmful information to moderators.